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Working With Your Neurologist

What to Expect from Your Visits

The neurologist will take your history since your last visit and ask you about symptoms and concerns you might have.  This is the time to err on the side of giving “too much information.”  The more your doctor knows about what’s going on with you the better he or she can help you.  Let them assess your full medical status and counsel you on addressing them with MS in mind.

When to Call Your Doctor

There is no cut and dry answer for when to call your doctor.  Definitely call your doctor when you need medicine refills or if you have an important question.  Whenever you are concerned about an experience you are having, call.  Your neurologist should never tell you NOT to call.

How to Get the Most from Your Appointments

Effectively Preparing for Your Appointment

  • Prepare a list of your concerns including your symptoms, problems and any questions you may have.
  • Prepare a list of your current medications. 
  • If you would like a copy of the doctor’s clinical notes sent to other doctors you are working with, then come prepared with the names and addresses of the doctors. 
    • Tip: Sharing clinical notes with all your doctors can be helpful so that everyone is on the same page.  The more information to facilitate care the better as this is a more efficient use of everyone’s time.

Making the Most of Your Time at Appointments

  • Prepare a list of questions and concerns.  Organize in order of importance.  Make sure you get your answers before you leave.  If you don’t understand an answer, then ask for clarification.
  • Bring a list of all current medications (including prescription, over-the-counter, vitamins, and herbal supplements.)
  • Bring someone with you so that there is another set of ears to hear the doctor.  
    • This person can take notes for you while you listen and interact with the doctor. 
    • This person can also help advocate for you and be a source of support during the visit.
    • This person can bring up questions you may forget to ask.

Be specific about your symptoms.  When did they start?  Are they getting better or worse?