Gather Information

You are ready to dig deeper.  Now that you’ve gotten organized, learned the basics, and put your team together you can start to dig deeper.

Start a file.  Gather information as you go so you can refer back to it as you need it.  Make sure you keep a medical file with a record of your doctor’s visits, lab/MRI results, and any other key data. 

Here’s what this site offers:

  • MS 101 is a step-by-step guide to helping you cope with and understand your diagnosis. We give you the information and tools you need to ask the right questions and begin planning a strategy for sharing your news and working with your medical team to understand your options.
  • Communities help you connect with others sharing this experience. Registering with TurnFirst allows you to use this feature.
  • Comprehensive and reliable resources give you the facts you need to make clear, well-informed decisions about your healthcare team, treatment options, and the choices you have about arranging your life to account for this new reality.
  • My Page gives you a personal place to store useful content for easy reference and access anytime you need it. Registering with TurnFirst allows you to use this feature.

Remember to be careful about using the World Wide Web to get your answers.  Google doesn’t filter content for accuracy and validation.  There is a lot of misinformation out there. Some of it can misguide you and some of it can scare you out of your wits. In addition, there are a lot of charlatans and “wishful thinkers” who are happy to sell you on their personal theories, miracle products, and healing services. Avoid all that for now.  Get your feet under you first.  Use this site to expand your resources when you are better prepared to evaluate what you are reading.

Quick Checklist for Information on the Internet

You can use the following checklist to help make sure that the health information you are reading online can be trusted.

  • Can you easily see who sponsors the Web site?
  • Is the sponsor a government agency, a medical school, or a reliable health-related organization, or is it related to one of these?
  • Is there contact information?
  • Can you tell when the information was written?
  • Is your privacy protected?

Does the Web site make claims that seem too good to be true? Are quick, miraculous cures promised?